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The “Valuating Personalized Healthcare” initiative Background: In recent years, there is a growing need to provide evidence and precisely measure the value of genomic medicine interventions so that policymakers are well-informed for decision making related to adoption and…
Continue readingDarrol J. Baker Darrol Joseph Baker is Director of the Golden Helix Foundation. He has a keen research interest in the field of clinical molecular genetics and next generation sequencing with a special focus on the industrialization of personalized medicine…
Continue readingVassilis Fragoulakis Dr. Vassilis Fragoulakis is an expert in pharmaceutical market policy and economics. His last three positions prior to joining The Golden Helix Foundation as a Senior Scientific Analyst, was research Fellow in the National School of Public Health…
Continue readingGeorge P. Patrinos George P. Patrinos obtained his PhD in Molecular Biology and Genetics from the University of Athens (Greece). He currently serves as Associate Professor of Pharmacogenomics and Pharmaceutical Biotechnology in the University of Patras (Greece), Department of Pharmacy…
Continue readingFeatured links National Human Genome Research Institute Genomic Medicine Alliance European Medicines Agency International Rare Diseases Research Consortium (IRDiRC) Other links FINDbase worldwide database for clinically relevant genome variation allele frequencies Center for Arab Genomic Studies RD-Connect:An integrated platform connecting…
Continue readingThe Golden Helix Foundation has been established in 2003 as an international non-profit scientific research organization with interdisciplinary research and educational activities in the field of genome medicine.
Continue readingNovember 2010: The Hellenic Node of the Human Variome Project has been officially incorporated in the Human Variome Project. January 2011: The Hellenic Bioscientists Association has officially endorsed the Hellenic Node of the Human Variome Project. October 2011: The new…
Continue readingABOUTSince its establishment, the Hellenic database is freely available and can already be accessed here. Detailed instructions for both using and querying the database are also available from the same site. There has been no claim of ownership of the…
Continue readingBACKGROUND The Hellenic National/Ethnic mutation database (NEMDB) has been developed since mid 2004 and described in early 2005. So far, The Hellenic NEMDB contains information on 14 different inherited disorders studied for the Hellenic population, which include a total of…
Continue readingHEADQUARTERS The Golden Helix Foundation Capital Tower, 6th floor 91, Waterloo Road London, SE1 8RT United Kingdom Email: secretariat {AT} goldenhelix (DOT) org REGIONAL CENTERS 1. SOUTHEAST EUROPE Research and Educational Institute for Health 3A, Androutsou street,…
Continue readingThe Golden Helix Foundation’s activities are supported by local and international research grants that support collaborative projects. The Golden Helix Foundation’s mission also relies on the support of corporate, institutional as well as individual donations. A donation would contribute towards…
Continue readingThe Golden Helix Institute of Biomedical Research has been established in 2003 as an international non-profit scientific organization with interdisciplinary research and educational activities in the field of genome medicine. The Institutes activities focus mainly in Europe and also in…
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